May 2008: KC & Vienna's Black Belt Project....

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Vienna, Age 9...Esaia, Age 2 and KC, Age 8
This is their story....


Our Black Belt project is to support and bring awareness about those who are born differently, looks different, and maybe acts different than us because we are all “special” in God’s eyes and are beautiful inside. Our little brother, Esaia, was born with a condition called hydrocephalus and holoproscencephaly-pretty big words, huh? All that means is, he was born with a lot of fluid in his head that didn’t drain properly and the left and right side of his brain didn’t separate like it should so the two sides don’t communicate to each other like it should. Soon after he was born, he had surgery to put a shunt in his head to drain the fluid to his stomach, but he had an infection a couple of weeks after his surgery and we had to rush him to Duke Hospital. I was so sad because he stayed in the hospital for three weeks with more surgeries!


Esaia seems to do okay with things for awhile even though he was a little slower at moving or talking, but then he started to have his seizures and had to take a medicine that tasted yucky because he was getting moody. Then he had to go see a neurologist, a brain doctor, who gave him a different medicine. He seems to do really good with this medicine; it didn’t make him sleepy or moody. When we go out in public, we have to be very careful he doesn’t catch anything or come close to someone who is sick because, he gets a fever really quickly! We have to always be prepared because when he has a high fever, he gets really bad seizures! That’s when we have to go to the neighbor’s or friend’s house or sometimes to the hospital with our parents.


Our little brother is doing okay now; he has a lot of therapy but no bad seizures for now. He is such a sweet, cuddly and happy little boy. We dream that one day, he will crawl, walk, talk, read, write, draw, and play outside with us. But until then we’ll always be there to read to him and hold him.


Our parents go to events that Special Blessings put together, like horseback riding, Christmas Parties, and the Nutcracker. We love horseback riding the most! It’s good for my family to stay in touch with families who go through the same things that we do. The people there are very nice.


Tae Kwon Do has taught us not just about focus, obedience, and confidence but also about respect; respect for others in the community no matter how different someone may be.

Vienna and KC

Testing for 1st Degree BlackBelt

Our Executive Director, Roxanne Sinsapaugh & Assistant Director, Mary Garris attended the 2009 KCOC Banquet. (see photos below)

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On the Town...

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Special Blessings: On the Town and in the Community

This page will show additional photo's from our Activities and Events....And give us updates on "What's Happening" in our Community...

Families fight to save services for their disabled loved ones... October 13th, 2009 Shae Crisson, ABC 11 News

Thousands of families and social workers are fighting to stop budget cuts that could have a big impact on their everyday lives.

The Ashby family is one of thousands of families who say it's nearly impossible to care for their disabled son 24-7 without some help. And the family says they fear that help may be going away.

Stephen Ashby, 14, has cerebral palsy and is unable to talk.

Joe Sinsapaugh, Ashby's habilitation technician helps him with everyday tasks and exercises to long term goals.

"Seeing him be able to do things a little bit closer to normal makes my heart sing," Stephen's mother Kim Ashby said.

But her heart song may hit a sour note as the North Carolina Department of Health and Human Services cuts its budget by $1.5 billion over the next 90 days as ordered by the General Assembly.

"While providers are going to be impacted, consumers to some degree will be impacted but we are trying to make the system stronger, streamlined, better managed and better coordinated in the process," North Carolina DHHS Secretary Lanier Cansler said.

"My brother is deaf and autistic and has a little case of cerebral palsy," Sinsapaugh said. "It's just so hard for us families and families that don't have children or people with disabilities have little to know understanding of what that means."

Some of Sinsapaugh's co-workers have already been let go. He says he hopes he doesn't lose his job and more importantly that Ashby and his family don't lose him.

Health and human services will release more details about the exact cuts Wednesday to a legislative oversight committee.

Families like the Ashby's and social workers and mental health groups will be protesting outside.

They'll be calling for a special session of the legislature asking them to rethink the cuts once they can see the human impact.

Recent Photo's from our October 25th, 2008 Support Group Meeting...
Special Guest: Dr. Cole Bradburn
Dr. Bradburn visited Special Blessings and explained the importance of Chiropractic Care. Topic: "Sick Care versus Well Care"
More information can be found at

Trinity Chiropractic Wellness

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A new administration is promising big changes and better care for thousands of mental health patients treated in state facilities.

Luckey Welsh is two weeks on the job, but has 40 years of hospital administration experience.

His appointment comes after another patient fell, hit his head and was left unattended for a full day and died at cherry hospital and other reports of patient abuse and staff arrests.

"We have human beings, taking care of human beings and therefore you have mistakes and sometimes you have people who really shouldn't be in their positions that should not be there," Welsh said. "Our job is going to be making sure we have the right people caring for the patients doing the best job they can and I'll promise you that if we find those who should not be there, they will be moved out. That's going to be our goal and our promise to the people."

At the age of 17, Roxanne Sinsapaugh says her son was allowed to bang his head on the O'Berry Center's wall and floor for hours. She says he had an earache and couldn't communicate.

"The pain is so excruciating he wants it out," Sinsapaugh said. "So, because he's nonverbal, because he's deaf, he's got all these other issues he's dealing with, Shaun's a head-banger."

She says he started banging his head at 1:30 a.m. and wasn't stopped by staff and given medicine until 4 hours later.

"I'm surprised he's alive," Sinsapaugh said.

Eyewitness News showed the new director of the state's 15 mental health and substance abuse facilities pictures of Shawn.

"I can tell you this is not what we're going to tolerate, this is not the kind of care we want to provide," Welsh said.

It's a promise that gives the Sinsapaugh family hope.

"I'm excited about it," Sinsapaugh said. "I'm hoping and I'm praying that we will continue to strengthen the system."

They're hoping other families like theirs will get the help and care they need.

Sinsapaugh says instead of suing the state, she is working as an advocate for children with disabilities and working with the state.

 

(Copyright ©2009 WTVD-TV/DT. All Rights Reserved.)

A Recent Article from the Arc of Texas...
Ignoring God's Children
12:00 AM CST on Saturday, November 15, 2008

Clay Boatright is president of The Arc of Dallas, and serves on the board of directors for The Arc of Texas.

It is startling to see your life depicted on a television show, especially when that show is a top-rated crime drama. This week's episode of Law & Order, titled "Challenged," showcased the challenges facing millions of American families, including mine.

The plot revolved around Pete, a 47-year-old man with intellectual disabilities who had been sent to a state institution by his parents when he was only 3. Willowbrook, the real-life New York institution closed in 1987, was described as a "hell hole." Now living in a community home, Pete today enjoyed his unique group of friends, diverse caregivers and the respect of his employer.

This episode's moral dilemma questioned parents who willingly place a child with disabilities in a state institution. It bitterly, and quite accurately, described the immeasurable stress that disabilities bring to a family and the lack of support they receive.

The writers, however, made one mistake. Several times the dialogue referenced, "that's how things were done then," suggesting times have changed. For many families, things have hardly changed at all.

As the parents of 8-year-old identical twins with severe developmental disabilities, my wife and I have come face to face with this moral dilemma. Our pediatrician recently told us that we should "prepare to place them somewhere" in the next couple of years. In other words, he recommended we institutionalize our children.

This happened in 2008, not 1964. While many parents make this difficult decision, it does not come easy. As reported in The Dallas Morning News, all 11 Texas "state schools" for people with developmental disabilities are currently under investigation by the Department of Justice for alleged abuse.

Most families want to stay together. However, as shown on Law & Order, the physical, emotional and financial strain on a family without support can be insurmountable. Community-based services cost less than institutionalization, but Texas forces people with disabilities to endure waiting lists for nearly a decade before receiving help. Not surprisingly, for families who can no longer go it alone, there is no waiting required to place their child into our DOJ-investigated institutions.

With almost 100,000 people on waiting lists, and more citizens institutionalized than in any other state, Texas ranks among the worst five states in the nation for disability services. Collin County has the lowest per capita funding for people with developmental disabilities in Texas. In cruel irony, Plano was recently named the wealthiest city in the United States.

In other words, the most prosperous city in America is at the bottom of the bottom for helping God's children most in need.

The lack of adequate care for people with disabilities is pervasive. Earlier this week, local news aired video from a Dallas County school bus showing a driver choking a student with disabilities. While most professional caregivers are compassionate, abuse is not isolated to certain areas, just as it was not isolated to the 1960s.
 
Caring for people is a matter of choice. Our state lawmakers can choose to end the waiting lists, while the federal government can chose to provide funds to upgrade education, housing and employment options. Our schools can choose to improve staff training and provide quality programs and supports. Our churches can choose to respond to God's word and "treat with special honor" those he created differently.
 
While these choices are not cheap, the costs pale in comparison to the destruction of families who have no choice at all.

Clay Boatright and his family live in Plano; his e-mail address is clay@jnine3.org.

Special Blessings
& Hunter Computers 
Co Hosted the June 8th, 2010,
Business After Hours
for the Knightdale, Wendell & Zebulon Chamber of Commerce...
Everyone had a Wonderful Time!

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Special Blessings @ the RBC Center on December 16th,2008...

Special Blessings says....Thank You! To Jerry Gower Construction, Country Hearth Inn, Kids Educational Center and the Carolina Hurricanes for Making a Difference this Holiday Season!!

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Lisa Sealy & Jerry Gower receiving a Special Blessings presentation on Saturday, December 13th, 2008.

Count Your Blessings & Smell The Flowers

Special Blessings & Designs by Donna....
On June 5th, 2008, Special Blessings & Designs by Donna (of Knightdale), co hosted the Knightdale Chamber of Commerce "Business After Hours"....A Great time was had by all! Thanks Donna for partnering with us!!
(For more information on Designs by Donna Florist, please visit her at:
211 N 1st Ave. Knightdale, NC 27545 or call: (919) 266-7878. She has Flowers for all occasions!! )

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Donna's Designs...

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 FYI: Did you know about the  Shining Stars Special Needs dance class at the Holly Springs School of  Dance?   Marilyn, the owner, offers it the first Saturday of every month  from 10-11. It is completely free, and they have a group of dancers from the studio who come in to pair up with the  children as they dance.  There has only been 1 child to attend the last three times, and I know the owner and the dancers would love to have more come. Next month they'll be doing the Nutcracker!  Please feel free to call  Marilyn at 557-3270

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Dance Classes for Special Needs...